CIRCLE-CP Study: Coaching, Learning, Empowerment in Cerebral Palsy - a 6-Week Integrated PT/OT Caregiver "Primer" Bootcamp for Infants Diagnosed With or at High Risk for Cerebral Palsy
University of California, San Francisco
Summary
This study focuses on the caregiver's knowledge, comfort, and confidence in interacting with and supporting their infant with Cerebral Palsy (CP) or at high risk for Cerebral Palsy. Four caregivers with their infants will be in one cohort to assess the benefits of group intervention. The intervention is delivered in a group, bootcamp-style educational format led by clinical team including pediatric physiatrist, physical therapist and occupational therapist.
Description
This program aims to provide caregivers with structured education and practical skills related to early intervention of cerebral palsy. Session content includes: (1) understanding the definition and nature of cerebral palsy; (2) the importance of early intervention and principles of infant neuroplasticity; and (3) foundational early motor strategies and CP-specific therapeutic principles commonly used in PT and OT. Sessions incorporate therapist demonstration, caregiver coaching, and guided motor play with the infant. In addition to knowledge-building, the intervention also aims to provide int…
Eligibility
- Age range
- 0–1 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Infants 3-15 months corrected age at enrollment * Diagnosed with CP or at high possibility of CP * Not yet independently walking at baseline * Medically stable for therapeutic handling and group play * Primary caregiver (\>=18years) able to attend all weekly group sessions * English-speaking only Exclusion Criteria: * Unstable medical condition (eg, frequent desaturations, emeses, uncontrolled seizures) or acute restrictions incompatible with participation * Concurrent enrollment in another intensive motor program * Profound sensory impairments that preclude group prog…
Interventions
- BehavioralCaregiver knowledge
This study focuses on the caregiver's knowledge, comfort, and confidence in interacting with and supporting their infant with Cerebral Palsy (CP) or at high risk for Cerebral Palsy.
- BehavioralPhysical therapy
Demonstration and guided practice, caregiver-infant hands-on interaction practice, home exercise program, and support for strengthening parent-infant interaction on Cerebral Palsy basics.
- BehavioralOccupational Therapy
Demonstration and guided practice, caregiver-infant hands-on interaction practice, home exercise program, and support for strengthening parent-infant interaction on Cerebral Palsy basics.
Location
- UCSF Cerebral Palsy & Movement Disorders CenterOakland, California