M.D. Anderson Cancer Center
To learn about the effects of a participant support community on illness perception, emotional well-being, and feelings of isolation among participants with NECC.
Primary Objective 1\. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC. Secondary Objectives 1. To understand how peer support affects communication with healthcare providers. 2. To explore how the support community affects coping strategies. 3. To evaluate the perceived value and acceptability of the support community structure and delivery. 4. To identify unmet needs and challenges experienced by participants with NECC.
Eligibility Criteria * Histologically confirmed NECC. * Aged 18 years or older. * English proficient. * Provision of signed and dated informed consent form. * Stated willingness to comply with all study procedures and availability for the duration of the study. * Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access). Exclusion Criteria None
Demographic questionnaire
Arctuva estimate
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