The Impact Of A Patient Support Community On Patients With Neuroendocrine Cervical Cancer: NECC Peer Support
M.D. Anderson Cancer Center
Summary
To learn about the effects of a participant support community on illness perception, emotional well-being, and feelings of isolation among participants with NECC.
Description
Primary Objective 1\. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC. Secondary Objectives 1. To understand how peer support affects communication with healthcare providers. 2. To explore how the support group affects coping strategies. 3. To evaluate the perceived value and acceptability of the support group structure and delivery. 4. To identify unmet needs and challenges experienced by participants with NECC.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Eligibility Criteria * Histologically confirmed NECC. * Aged 18 years or older. * English proficient. * Provision of signed and dated informed consent form. * Stated willingness to comply with all study procedures and availability for the duration of the study. * Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access). Exclusion Criteria None
Interventions
- OtherQuestionnaire
Demographic questionnaire
Location
- MD Anderson Cancer CenterHouston, Texas