SPIDER - Spinal Dural Arteriovenous Fistula International Data and Outcomes Registry
Thomas Jefferson University
Summary
Given the lack of large multicenter datasets in the context of Spinal arteriovenous fistula, the strength of the evidence surrounding this rare disease is limited. SPIDER hence aims to address that by compiling patient-level data from centers all around the world.
Description
Type 1 or dural spinal arteriovenous fistulas (SDAVFs) are the most common spinal vascular malformation but remain frequently underdiagnosed due to their insidious onset and nonspecific clinical presentation. Delayed diagnosis is common and often results in progressive, and sometimes irreversible, myelopathy. Despite advances in imaging and treatment, there remains significant variability in diagnostic timelines, treatment strategies (endovascular, surgical, or combined), and reported outcomes across institutions. Existing literature is largely limited to single-center retrospective series or…
Eligibility
- Age range
- Not specified
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Type 1 spinal dural arteriovenous fistula, confirmed on imaging * Surgically or endovascularly treated * At least 1 available primary outcome
Location
- Thomas Jefferson University HospitalPhiladelphia, Pennsylvania