Bridging Adolescent and Young Adult Sarcoma Survivors With Personalized Oncology Exercise Service (AYA-ONE): A Pilot Intervention
Dana-Farber Cancer Institute
Summary
This study will evaluate strategies to improve physical function and promote exercise and physical activity in adolescents and young adults (AYAs) with sarcoma. The study will assess the feasibility of a standardized triage system for referring AYAs with sarcoma to appropriate exercise and rehabilitation services, and will also examine changes in physical function and health-related quality of life before and after a 12-week personalized exercise program.
Description
This is a single-arm pilot study evaluating the feasibility of using a modified Exercise in Cancer Evaluation and Decision Support (EXCEEDS) algorithm to triage and refer adolescents and young adults (AYAs) with sarcoma to rehabilitation and exercise services at Dana-Farber Cancer Institute (DFCI). The AYA-ONE study has two parts: Part 1 includes triage and referral using the EXCEEDS tool, and Part 2 includes a 12-week personalized exercise program for eligible participants. The EXCEEDS tool is designed to help match participants to rehabilitation and exercise services based on their needs. Pa…
Eligibility
- Age range
- 15–39 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Diagnosed with a bone or soft tissue sarcoma * Age 15-39 at time of diagnosis * Age 15 and older at time of enrollment * Age 15-17 at time of enrollment, with assent from participant and consent from parent/legal guardian * Established patient of the DFCI Sarcoma Center or Jimmy Fund * Able to read and understand English (to complete required questionnaires and participate in training/coaching) * Individuals who are not yet adults (teenagers) if they assent and their parents/legal guardians' consent to participation. Exclusion Criteria: * Unstable cardiovascular diseas…
Interventions
- BehavioralExercise Triage and Personalized Exercise Program
* Part 1: Completion of the EXCEEDS triage tool to assess physical function and determine appropriate referral to rehabilitation or exercise services. * Part 2: Eligible participants receive a 12-week personalized exercise program, which may be supervised or unsupervised, and includes a Garmin activity monitor, resistance bands, and a stepper machine.
Locations (3)
- Boston Children's HospitalBoston, Massachusetts
- Brigham and Women's HospitalBoston, Massachusetts
- Dana-Farber Cancer InstituteBoston, Massachusetts