Foundations of Communication in Uncertainty Study (FOCUS): Insights From Bereaved Parents and Oncologists
St. Jude Children's Research Hospital
Summary
Investigators want to find better ways for doctors and families to talk about cancer and how uncertainty may affect a child's life.
Description
Primary Objective * To characterize how bereaved parents of children with cancer and their child's oncologist perceive their experience with communication about prognostic uncertainty during the child's cancer journey and during bereavement. Secondary Objective * To elicit parents' and oncologists' preferences and recommendations for how clinicians should talk with children and families about prognosis in the setting of uncertainty. This study aims to explore bereaved parents' and oncologists' reflections on communication about prognostic uncertainty during the child's cancer treatment. Pa…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Not specified
Inclusion Criteria: * All participants must be ≥ 18 years of age or legally emancipated * Parent Participants must have a child who: * Received cancer care from a clinician at St. Jude, as documented in the electronic medical record, AND * Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment. * Oncologist participants at St. Jude must: * Be listed as the primary oncologist as documented in the electronic medical record, AND * Have the respective patient's parent agreement to participate in the study. Exclusion Criteria: * Declining, refusal, o…
Location
- St. Jude Children's Research HospitalMemphis, Tennessee