The AYA Oncology Self-care Movement: An Influencer-driven Social Media Intervention for Oral Chemotherapy Adherence
Northwestern University
Summary
This trial will test the impact of a social media intervention for improving oral chemotherapy adherence among adolescents and young adults (AYAs) with acute lymphoblastic leukemia.
Description
For adolescents and young adults (AYAs) who meet inclusion criteria, trained staff will introduce the study and confirm eligibility using a standardized checklist. For AYAs \<18 years old, we will conduct enrollment with AYAs and their parent/legal guardian together, as we have successfully done before. After study procedures are thoroughly explained and questions are answered, informed written eConsent and eAssent (AYAs \<18) will be obtained. Across aims, AYAs will then complete a baseline questionnaire (assessing demographics, cancer information, and perceived medication adherence and self…
Eligibility
- Age range
- 15–25 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * 15-25 years old * Diagnosed with acute lymphoblastic leukemia (ALL) * Taking 6-mercpatopurine (6-MP) as part of their maintenance treatment with at least 6-months remaining * Be able to speak and read English * Have at least one active social media account (e.g., Instagram, TikTok) or be willing to download a platform for the study * Endorse missing a 6-MP dose in the prior month and/or at least one adherence barrier. Exclusion Criteria: * Cognitive impairments that would limit ability to complete measures, determined by the medical team * Absence of inclusion criteria…
Interventions
- BehavioralEducational Website
Website providing basic information about 6-mercaptopurine (e.g., type, what it is used for, strategies for remembering to take it)
- Behavioral#AYAOSM
Social media messages (videos/images) that target medication self-management skills/knowledge, self-efficacy, and social support. Messages were created in collaboration with young adult cancer survivors who are also prominent content creators or "influencers".
Locations (4)
- Ann & Robert H. Lurie Children's Hospital of ChicagoChicago, Illinois
- Northwestern UniversityChicago, Illinois
- The Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania
- MD Anderson Cancer CenterHouston, Texas