Support and Healing Intervention for Navigating Parental Cancer Experiences (SHINE): A Mixed-Methods Study to Develop and Pilot-Test a Family-Centered Psychosocial Intervention for Adolescents With a Parent Diagnosed With Cancer
University of Texas Southwestern Medical Center
Summary
e purpose of this study is to develop and evaluate SHINE (Support and Healing Intervention for Navigating Parental Cancer Experiences), a family-centered program designed to support adolescents whose parent has been diagnosed with cancer. The study has two phases. In the first phase, parents and adolescents will participate in interviews or focus groups to help researchers understand their experiences and identify the types of support that families need. Information from these discussions will be used to refine the SHINE program. In the second phase, families will be randomly assigned to either receive the SHINE program or continue with their usual supportive care. The SHINE program consists of approximately four sessions delivered over 8 weeks and focuses on improving communication, coping skills, resilience, and emotional well-being. Adolescents will complete questionnaires before the program begins, immediately after the 8-week intervention period, and 3 months later. Researchers will evaluate whether SHINE is feasible to deliver, acceptable to families, and shows promise for improving psychosocial outcomes among adolescents coping with a parent's cancer diagnosis.
Description
A parental cancer diagnosis can significantly affect the emotional and psychological well-being of children and adolescents. Youth experiencing parental cancer are at increased risk for anxiety, depression, stress, communication difficulties, and impaired coping. Despite these challenges, relatively few evidence-based psychosocial interventions have been developed specifically for this population, and many existing interventions have not incorporated input from adolescents and families during development. The SHINE (Support and Healing Intervention for Navigating Parental Cancer Experiences)…