University of California, San Francisco
Rectal cancer care is increasingly complex and may include systemic therapy, radiation therapy, surgery, or nonoperative watch-and-wait surveillance. These treatments can have both short- and long-term effects on bowel, urinary, sexual, and stoma-related function. Prior studies have often assessed quality of life and treatment decision experiences at a single time point or after one type of treatment, resulting in limited information about how patients' experiences change throughout their course of care. This study will evaluate health-related quality of life and experiences with treatment decisions among patients with non-metastatic rectal cancer using validated patient-reported outcome measures over the course of treatment.
PRIMARY OBJECTIVES: 1. Evaluate feasibility and adherence of participant-reported outcomes through UCSF MyChart. 2. Evaluate changes in health-related quality of life over the course of rectal cancer treatment. SECONDARY OBJECTIVES: 1. Evaluate longitudinal changes in decisional regret over the course of rectal cancer treatment. 2. Evaluate the association between health-related quality of life and decisional regret over the course of rectal cancer treatment. 3. Evaluate differences in health-related quality of life and decisional regret trajectories by treatment stage and modality. 4. Eval…
Inclusion Criteria: 1. Adults age 18 years or older meet all of the following. 2. Documented rectal cancer diagnosis (for example, ICD-10-CM C20) without metastatic disease at the initial study eligibility assessment. 3. Established follow-up with UCSF colorectal surgery, medical oncology, or radiation oncology, generally defined as at least two encounters more than 1 month apart. 4. Active UCSF MyChart access by enrollment and ability to personally complete the electronic consent and surveys, independently or with reasonable technical or accessibility assistance that does not answer question…
Patient-reported outcome measures: Assessment of Burden in Colorectal Cancer (ABCRC) \& Decisional Regret Scale (DRS)
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