Indiana University
This prospective pilot study will evaluate an AI-enabled autism caregiver support tool for caregivers of children with autism in Indiana and Kenya. The tool is designed to provide evidence-based autism information, caregiver emotional support, and local service-navigation guidance, with safety guardrails and escalation pathways for high-risk concerns. Caregivers will receive access to the tool and complete baseline and follow-up assessments. The primary purpose of the study is to assess feasibility, acceptability, safety, engagement, and clinical-trial readiness. Exploratory caregiver outcomes include autism knowledge, caregiver self-efficacy, emotional distress and well-being, resource navigation, unmet needs, service engagement, satisfaction, and preparedness to take next steps after diagnosis. Findings will inform the design of a future fully powered effectiveness-implementation trial.
Families of children with autism often face significant challenges following diagnosis, including difficulty accessing reliable information, navigating complex systems of care, identifying appropriate services, and managing the emotional demands associated with caregiving. These challenges may be particularly pronounced in rural, underserved, and resource-constrained settings where access to specialty autism services and family navigation support is limited. This study will evaluate an AI-enabled autism caregiver support tool designed to provide evidence-based autism information, caregiver em…
Inclusion Criteria: * Adult caregiver aged 18 years or older. * Parent or primary caregiver of a child with autism spectrum disorder. * Resides within the study catchment area in Indiana, United States or western Kenya. * Able to provide informed consent. * Has access to a mobile phone, tablet, or computer capable of accessing the AI-enabled caregiver support tool. * Able to communicate in a study-supported language. * Willing to use the AI-enabled caregiver support tool and complete study assessments. Exclusion Criteria: * Younger than 18 years of age. * Unable or unwilling to provide info…
Participants will receive access to an AI-enabled autism caregiver support tool adapted for their local setting. The tool provides plain-language, evidence-based information about autism; answers caregiver questions; supports caregiver coping; helps families identify relevant services and resources; and includes safety guardrails for crisis, medical, diagnostic, behavioral, and treatment-related questions. The tool is not intended to diagnose autism, replace clinical care, or provide emergency services.
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