Adaptation of an Evidence-based Goals of Care Communication Intervention for Adolescent and Young Adult Cancer Patients (AYAC)
Memorial Sloan Kettering Cancer Center
Summary
The purpose of this study is to adapt a goals of care communication tool, called Jumpstart, for adolescent and young adult cancer patients (also called AYAC). Goals of care conversations are discussions between patients and their doctors about the patient's wishes, values, and priorities for their care. The Jumpstart tool was created for adult patients to help start these conversations during doctor's appointments. This study will adapt the tool so that it works better for adolescent and young adult patients with cancer. We will also look at whether the tool is practical and useful for AYAC and for medical doctors who see or treat AYAC patients.
Description
The goal of this project is to adapt an existing, efficacious goals of care conversations (GOCC) Jumpstart intervention for adolescent and young adult cancer patients (AYAC) using the Cultural Adaptation Process Model (CAPM). This goal will be accomplished in three aims: In Aim 1, we will preliminarily adapt the intervention materials. In Aim 2, we will strengthen the preliminarily adapted materials. In Aim 3, we will pilot test the acceptability, feasibility, fidelity, and preliminary impact of the adapted intervention in a pilot cluster RCT. Aims 1 and 2 will produce patient and oncologist…
Eligibility
- Age range
- 18–39 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: Patient (All Aims) * Between ages 18-39; * Has a diagnosis of Stage III or IV cancer as per clinician note in the EMR; * Attended at least one, but no more than three, appointments with their oncologist as per EMR or self-report; * English as their primary language in the EMR; * Can independently consent to study procedures without a surrogate or legally authorized representative; * MSK treating oncologist answers "no" to the question, "Would you be surprised if this patient died within the next year?" * AIMS 2 \& 3 ONLY: Did not participate in previous aims Clinician (Al…
Interventions
- OtherJumpstart GOCC intervention
1. Patient-facing survey; 2. GOCC tips sheet for the patient; 3. GOCC guide for providers
Locations (7)
- Memorial Sloan Kettering at Basking Ridge (All protocol activities)Basking Ridge, New Jersey
- Memorial Sloan Kettering Monmouth (All Protocol Activities)Middletown, New Jersey
- Memorial Sloan Kettering Bergen (All Protocol Activities)Montvale, New Jersey
- Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities)Commack, New York
- Memorial Sloan Kettering Westchester (All Protocol Activities)Harrison, New York
- Memorial Sloan Kettering Cancer CenterNew York, New York