Boston University Charles River Campus
Infants with Down syndrome (DS) exhibit early developmental delays in motor skills and multiple other domains. Once infants are upright and moving, they have new opportunities for exploring the environment and interacting with objects and people that are important for early learning and development. This project will allow the investigators to assess the feasibility of a home-based mobility and play intervention for infants with DS (using a body weight supported harness system- Portable Mobility Use Aid (PUMA) for Children and characterize its impact on promoting mobility, exploration, and play with objects and caregivers. PUMA is a specialized pediatric partial body-weight support system designed to give children with developmental delays or physical disabilities the upright support they need to move, explore, and play independently.
Inclusion Criteria: Infants/toddlers inclusion criteria * confirmed diagnosis of Down syndrome; * able to sit without support and not yet taking any independent steps Primary caregiver inclusion criteria * proficient in English * has access to a computer, tablet or mobile phone with a camera and microphone * has access to zoom Infants/toddlers exclusion criteria: * severe, uncontrolled medical problems (including heart disease with cardiovascular instability, uncontrolled epilepsy)
Families will be asked to use the PUMA system with their infant 5 days/week for a minimum of 30 min (longer is permitted) for one month.
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