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International Prospective Registry of Patients With Alpha Thalassemia
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal the…
Alpha-ThalassemiaAlpha Thalassemia MajorAlpha Thalassemia Minor
University of California, San FranciscoNCT04872179
FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
FLOWER is a completely virtual, nationwide, real-world observational study to collect, annotate, standardize, and report clinical data for rare diseases. Patie…
Alpha-ThalassemiaBeta-ThalassemiaAmyloidosis+14 more
xCuresNCT06539169