The Center for Autonomic Medicine in Pediatrics (CAMP), in collaboration with leading CCHS clinicians, scientists, and patient advocacy groups around the world…

Congenital Central Hypoventilation Syndrome

~Estimated

~$10 – $1,125

Ilya KhaytinNCT03088020

Neurocognitive Outcome as a Metric for Evaluating Therapeutic Intervention and Treatment Mechanisms in Congenital Central Hypoventilation Syndrome (CCHS): A Multi-Site Study Using The NIH Toolbox

Congenital central hypoventilation syndrome (CCHS) is a rare disorder of autonomic and respiratory regulation that frequently alters oxygen delivery to the bra…

Congenital Central Hypoventilation SyndromeCongenital Central HypoventilationCCHS+3 more

~Estimated

~$10 – $1,125

Ilya KhaytinNCT03568669

CCHS SHARE: A Multi-center Longitudinal Natural History Study

The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing st…

Congenital Central Hypoventilation Syndrome

~Estimated

~$10 – $750

Ann & Robert H Lurie Children's Hospital of ChicagoNCT06554275