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Duchenne Outcomes Research Interchange Data Enrichment Through EHR Extraction
This study aims to collect retrospective and prospective, long-term data of patients with dystrophinopathy (including Duchenne, Becker, and female carriers) th…
Duchenne Muscular Dystrophy (DMD)Becker Muscular DystrophyDystrophinopathy+1 more
Estimated
~$10 – $1,125
The Duchenne RegistryNCT07609394
The Duchenne Registry: An International, Patient-Report Registry for Individuals With Duchenne and Becker Muscular Dystrophy (Member of TREAT-NMD Neuromuscular Network)
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the…
Duchenne Muscular DystrophyBecker Muscular DystrophyDystrophinopathy+2 more
Estimated
~$10 – $1,125
The Duchenne RegistryNCT02069756