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An International Observational Registry Study to Further Describe Long-term Safety and Effectiveness of Palovarotene in Patients With Fibrodysplasia Ossificans Progressiva (FOP)

The participants in this registry study will have fibrodysplasia ossificans progressiva (FOP). FOP is an ultra-rare, severely disabling disease characterized …

Fibrodysplasia Ossificans Progressiva

Estimated

~$10 – $1,125

IpsenNCT06089616

An Observational Study of IL1 Inhibition for Blocking ACVR1-Induced Flare Activity and Heterotopic Ossification in Fibrodysplasia Ossificans Progressiva (FOP)

This is an observational pre-post study to observe if the off label use of anti-IL1 therapies, such as anakinra or canakinumab, can block ACVR1-induced flare a…

Fibrodysplasia Ossificans Progressiva (FOP)

Estimated

~$10 – $675

University of California, San FranciscoNCT06724562

Phase 2

A Phase 2, Randomized, Double-Blind, Placebo-Controlled Study to Evaluate the Efficacy, Safety, and Tolerability of INCB000928 in Participants With Fibrodysplasia Ossificans Progressiva

This Phase 2, Randomized, Double-Blind, Placebo-Controlled Study is intended to evaluate the Efficacy, Safety, and Tolerability and PK of INCB000928 administer…

Fibrodysplasia Ossificans Progressiva (FOP)

Estimated

~$10 – $8,750

Incyte CorporationNCT05090891

FOP Registry: A Global Registry for the Fibrodysplasia Ossificans Progressiva Community

The Fibrodysplasia Ossificans Progressiva (FOP) Registry is a global, non-interventional, voluntary database that captures demographic and disease data directl…

Fibrodysplasia Ossificans Progressiva (FOP)

Estimated

~$10 – $1,125

The International FOP AssociationNCT02745158