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Coordination of Rare Diseases at Sanford
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, …
Rare DisordersUndiagnosed DisordersDisorders of Unknown Prevalence+340 more
Sanford HealthNCT01793168
Characterization of Familial Myopathy and Paget Disease of Bone
The investigators are researching families with inherited inclusion body myopathy (IBM) and/or Paget disease of bone (PDB) and/or dementia (FTD) which is also …
Inclusion Body Myopathy With Early-onset Paget Disease and Frontotemporal DementiaPaget Disease of BoneFrontotemporal Dementia+1 more
University of California, IrvineNCT01353430