CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, …

Rare DisordersUndiagnosed DisordersDisorders of Unknown Prevalence+340 more

~Estimated

~$10 – $1,125

Sanford HealthNCT01793168

Characterization of Familial Myopathy and Paget Disease of Bone

The investigators are researching families with inherited inclusion body myopathy (IBM) and/or Paget disease of bone (PDB) and/or dementia (FTD) which is also …

Inclusion Body Myopathy With Early-onset Paget Disease and Frontotemporal DementiaPaget Disease of BoneFrontotemporal Dementia+1 more

~Estimated

~$10 – $750

University of California, IrvineNCT01353430