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Characterization of the Natural History of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation

In this study, we will conduct retrospective chart and imaging reviews and prospective longitudinal virtual assessments of individuals with LBSL.

LeukoencephalopathiesLBSLLeukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation+3 more

~Estimated

~$10 – $1,050

Hugo W. Moser Research Institute at Kennedy Krieger, Inc.NCT03624374

The Myelin Disorders Biorepository Project and Global Leukodystrophy Initiative Clinical Trials Network

The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to s…

LeukodystrophyWhite Matter DiseaseLeukoencephalopathies+63 more

~Estimated

~$10 – $750

Children's Hospital of PhiladelphiaNCT03047369