The Registry and Natural History of Epilepsy-Dyskinesia Syndromes is focused on gathering longitudinal clinical data as well as biological samples (blood, urin…

Epilepsy-DyskinesiaEpilepsyDyskinesia+11 more

~Estimated

~$10 – $750

Boston Children's HospitalNCT06967727

Multicenter Pediatric Deep Brain Stimulation Registry

There is limited data on outcomes for children who have undergone deep brain stimulation (DBS) for movement disorders, and individual centers performing this s…

DystoniaEpilepsy in ChildrenCerebral Palsy+6 more

~Estimated

~$10 – $750

Boston Children's HospitalNCT06585618

A Retrospective Survey-based Multicenter Study to Delineate the Molecular and Phenotypic Spectrum of Epilepsy-dyskinesia Syndromes

The Epilepsy-Dyskinesia Study aims to advance the understanding of the clinical and molecular spectrum of epilepsy-dyskinesia syndromes, monogenic diseases tha…

Epilepsy in ChildrenDyskinesiasMovement Disorders in Children+7 more

~Estimated

~$10 – $750

Boston Children's HospitalNCT06585605