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Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)

The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD

Muscular Dystrophy, Facioscapulohumeral

University of Kansas Medical CenterNCT06847282

Clenbuterol to Target DUX4 in FSHD (Target FSHD): Open Label Safety and Tolerability Study of 3 Doses of Clenbuterol

The purpose of this study is to determine if Clenbuterol is a therapeutic option for FSHD by determining the safety and tolerability of the medication at three…

Muscular Dystrophy, Facioscapulohumeral

~$10 – $7,500

Jeffrey StatlandNCT06721299

BetterLife FSHD: A Patient-driven Health and Research Platform

BetterLife FSHD is a registry platform built to support people living with FSHD. It connects patients with personalized resources, tools, and research opportun…

FSHFSH Muscular DystrophyFSHD - Facioscapulohumeral Muscular Dystrophy+8 more

~$10 – $1,125

FSHD SocietyNCT07409142