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Neurofibromatosis (NF) Registry Portal Funded by Children's Tumor Foundation
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay…
Neurofibromatosis 1Neurofibromatosis 2Schwannomatosis
The Children's Tumor FoundationNCT01885767
Surveillance for Malignant Transformation of Neurofibromatosis Type 1 (NF1) Related Peripheral Nerve Sheath Tumors (PNST)
Background: Neurofibromatosis type 1 (NF1) is a genetic disease that can cause many symptoms. About half of people with NF1 will develop benign (noncancerous)…
Neurofibromatosis 1Nerve Sheath Neoplasms
National Cancer Institute (NCI)NCT06222203