The RASopathies are a group of developmental disorders caused by genetic changes in the genes that compose the Ras/mitogen activated protein kinase (MAPK) path…

RAS MutationNeurofibromatosis 1Noonan Syndrome+11 more

~Estimated

~$10 – $675

Children's Hospital Medical Center, CincinnatiNCT04395495

Neurofibromatosis (NF) Registry Portal Funded by Children's Tumor Foundation

The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay…

Neurofibromatosis 1Neurofibromatosis 2Schwannomatosis

~Estimated

~$10 – $750

The Children's Tumor FoundationNCT01885767

← PreviousPage 2 of 2Next →