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National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members
Myotonic dystrophy (DM) and facioscapulohumeral muscular dystrophy (FSHD) are inherited disorders characterized by progressive muscle weakness and loss of musc…
Myotonic DystrophyFacioscapulohumeral Muscular DystrophyMuscular Dystrophy+6 more
University of RochesterNCT00082108
Myotonic Dystrophy Family Registry
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in…
Myotonic DystrophyCongenital Myotonic DystrophyMyotonic Dystrophy 1+13 more
Myotonic Dystrophy FoundationNCT02398786