The Shwachman-Diamond Syndrome Global Patient Survey and Collaboration Program (SDS-GPS) is an opportunity for patients and their families - from anywhere in t…

Shwachman-Diamond SyndromeSDSIBMF+24 more

~Estimated

~$10 – $1,050

Shwachman-Diamond Syndrome Alliance IncNCT06999954

Shwachman Diamond Syndrome Registry and Study (SDS Registry)

Shwachman-Diamond syndrome (SDS) is a genetic condition characterized by bone marrow failure, medical co-morbidities, and leukemia predisposition. SDS-Like pat…

Shwachman-Diamond SyndromeShwachman-Diamond Syndrome-Like

~Estimated

~$10 – $750

Boston Children's HospitalNCT06056908