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53 recruiting studies matching your filters

BetterLife FSHD: A Patient-driven Health and Research Platform

BetterLife FSHD is a registry platform built to support people living with FSHD. It connects patients with personalized resources, tools, and research opportun…

FSHFSH Muscular DystrophyFSHD - Facioscapulohumeral Muscular Dystrophy+8 more

Estimated

~$10 – $1,125

FSHD SocietyNCT07409142

Establishing Walking-related Digital Biomarkers in Rare Childhood Onset Progressive Neuromuscular Disorders

The purpose of this research is (1) to identify disease specific walking-related digital biomarkers of disease severity, and (2) monitor longitudinal changes i…

Spinal Muscular Atrophy Type 3Duchenne Muscular Dystrophy (DMD)

Estimated

~$10 – $750

Columbia UniversityNCT06839469

Molecular Analysis of Neuromuscular Disease

In the Congenital Myopathy Research Program at Boston Children's Hospital and Harvard Medical School, the researchers are studying the congenital myopathies (n…

Central Core DiseaseCentronuclear MyopathyCongenital Fiber Type Disproportion+5 more

Estimated

~$10 – $750

Boston Children's HospitalNCT00272883

Duchenne Muscular Dystrophy Quality of Life: Qualitative Interviews With Patients and Caregivers

The purpose of this study is to understand DMD functional losses or abilities and their association with independence and quality of life from the perspective …

Duchenne Muscular Dystrophy (DMD)

Estimated

~$10 – $1,050

Red Nucleus Enterprise Solutions, LLCNCT06925269

The Duchenne Registry: An International, Patient-Report Registry for Individuals With Duchenne and Becker Muscular Dystrophy (Member of TREAT-NMD Neuromuscular Network)

The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the…

Duchenne Muscular DystrophyBecker Muscular DystrophyDystrophinopathy+2 more

Estimated

~$10 – $1,125

The Duchenne RegistryNCT02069756